Sunday, June 22, 2014

Third Appointment with Dr. Sultan

What improvement do we have seen? 
We have seen Tommy with more energy, reported by grandparents and swimming instructor. My husband and I have noticed that he is becoming to notice things around his environment, like the light switches when is dark as well as following better directions in English and Spanish. He is verbally communicating more with me than before. He has requested drink, snack and eat. Yesterday, he came to the pantry and told me 'Chips' when I was looking for something to give them for snack. Good eye contact! He had a period of time were he avoided eye contact, so this has been a battle. And it was more noticeable when he met estrangers. This is something I can say completely overcome.  It  was hard to keep him on a task because he had the flight or fight reaction. It has improved a lot in just one month on the treatment. Big punch to Autism, Yahoooooo!

Medical Intervention:
  • Big Cells:  I had put 7 shots to Tommy already of Vitamin B12. We will have to do it for 2 more months. 
  • Candida: We are treating Candida with anti-fungus, No yeast and No sugar diet. Getting food for his new diet has become easy Now that big retailer stores like Walmart has expanded their selection of organic food. We still need a few stuff from Whole food, but not as much as before because we can find them mostly at the groceries stores near by. 
  • Low Iron: Tommy is taking Ferrous Sulfate Iron, which is used to treat or prevent low iron in the blood. This form of iron is better absorbed. So we started him on this new iron supplement Thursday May 29. 
  • Thyroid and high cholesterol: I took Tommy's tempeture for 5 days and his temperature is very low.
Second stage of the Medical Treatment:
The main concern right now is Tommy's Thyroid. Dr. Sultan think is not working properly even when he is taken synthetic thyroid. Tommy's temperature is way too low from the normal range, which is a strong indication his medication is not working as it should. There is also another indication, Tommy has lost 5 pounds too quick. His appetite hasn't changed, so we know there is something wrong. So Dr. Sultan has ordered more testing for the thyroid and not just the common tests our current ENT always orders. So depending on the test results, we will stop working with our current ENT. Since the first appointment, he was very persistent that the thyroid could be one of the big issues in his Autism diagnosis. Thyroid is also a big issue in kids with Down syndrome, so I am just glad Dr. Sultan has been very proactive in this matter. Dr. Sultan also ordered a complete panel of liver function, which it has made me  a little nervous  because liver dysfunction is a big issue for kids with AUTISM as well for kids with DOWN SYNDROME as a single diagnosis. So I don't know if for having two coexisting conditions could affect Tommy's liver even more than kids with a single diagnosis. So I am praying if there is something wrong that it can easily be treated.

THE SKY IS THE LIMIT!
Please send your prayers in Tommy's way.

4 comments:

Anonymous said...

I am curious on the part of "no sugar". Is Tommy allowed fresh fruits? I think eliminating processed sugars wouldn't be too hard, but wasn't sure if he was still allowed natural sugars.

Anonymous said...

I am curious regarding the "no sugar" part of this diet. Is Tommy still allowed natural sugars like fruit? I would believe elimintating refined sugars would be okay, but natural sugars might be difficult

Unknown said...

I am curious about the no sugar part of his diet. does the doctor allow for natural sugars like fresh fruits?

Unknown said...

I am curious about the no sugar part of his diet. does the doctor allow for natural sugars like fresh fruit?