Tuesday, August 23, 2016

Overcoming the ODDS

My son's dual diagnosis is not an easy route to travel, because it has a lot of ups and downs, bumps and wholes, sometimes very high bumps or vey deep wholes that make me tumble. But when I ask to my self, Why me? I can easily find the answer. I am not a quitter, I am a fighter. I was chosen to raise my son because I have the courage to go in opposite direction, when most people thing that there is just one way to do things, I think there are multiple odd ways of doing things with outstanding results.

Since having my son with T21 almost 9 years ago, higher expectations are becoming  part of the norm for a family and society about a child with T21. Can we say the same for a child with dual diagnosis? No, there is not much high expectation and not much hope for a child with dual diagnosis, Down syndrome and Autism. Autism completely overshadows Down syndrome. Many people even don't know that this is possible. While others think that the dual diagnosis makes them even more r-word. There are not specific intervention for these kids and there is not enough sciencist research to understand the interaction of both conditions. I know that outside of my bubble, there is not hope for a child with dual diagnosis in our society!

Should these paradigms stop me? Of course, NO. This is the fiul that keeps me going. After all this year living with my son with coexisting conditions, I know that there is hope. This will be the legacy I will leave to the future generations to come. There are many stories of kids recovering from Autism, but I cannot say the same from a child who has Down syndrome and Autism. Since he was in the womb, he showed me that he will be an overcomer, a true fighter.  I just want to share this video of our Journey and how he is overcoming many challenges related to Autism.

video

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