Friday, July 12, 2013

Happy Birthday, Francis!

Today is Francis 2nd birthday and we are so proud of our little man. I think he has came to this world with a mission from above, he may be teaching others to chill out, enjoy life and be in piece. This is what he have taught at his short age!

Francis's milestones 20-24 months:
  • He began to be fascinated with puzzles at a very young age. At his 20 months began to work on puzzles for 3 year old kids. 
  • He can recognize colors (red, yellow, blue, red, purple, black, orange, brown, pink and white)
  • He can recognized shapes and generalized them to real objects (square, circle, diamond, octagon, rectangle, oval, start, heart, triangle)
  • He can recognized all alphabet letters (upper and lowercase) on command or unprompted any where he sees print letters (public places, TV, magazines, computers, etc).
  • He can sight read single words
  • He can recognized and count numbers until 10 in English and Spanish. He also generalize them in any print material such as magaziens, books, cooputer screen, etc. He started this on his own).
  • Francis is using more complex language. He began to use three-four words sentences by his 20 month. Example: "Mamma, I want juice." or "Mama, I said Juice." I want my car" "Bye, See you soon", "See yah!", "See you later, Dada." Currently, he is beginning to use 5-word sentence.
  • He could name at a picture before his 18 months. But at his 21 month began to give details about the picture. Example: If it is an apple he will say "Red Apple."
  • By his initiative he is working on putting his shoes on. This also began to emerge when he was turing one year old, but we has had not encourage this skills so much.
  • He began to understand sharing and taking turns at his 21 month. I think I have influenced on this, he still has to work on this, but he definitely understand the concept.
  • He can jump, yes actually clearing his feet out of the ground. He reached this milestone by the end of his 19 month (for a typical child this milestones is reach around 25 months and it is considered advanced for a 25 month old child).
  • Walking independently up and down the steps without holding the real began to emerge at the beginning of his 21 month.
  • Enjoys pretending and has a vivid imagination. One day he was hungry after dinner time because he refuses to eat. He came to me and said: "Fredy is hungry, mama" (Fredy is his blanket). "Fredy wants snack." When I asked what Fredy wanted to eat he said babanas. So Francis and Fredy sat at the time to eat a late snack. He began to fit Fredy, a bite for Fredy a bite for him while he was having a conversation with Fredy.
  • Talks during play, which emerged at his 21 Month. This is a skills that emerge when the child is getting closer to 3.
  • He enjoys to ride the scooter and the balance, he can ride then short distances at his 22 month, but I am holding on him riding these toys until we get protective gear. 
Francis had his screening from Parents as Teachers at his 20 months, and he scored 100% on all advanced developmental areas, and there are milestones he has accomplished or were emerging that were not part of the screening because they are for older kids. According to the lady from Parents as teachers, he is developmentally about a year ahead of his birth age with an incredible expressive and receptive communication skills as well as attention span above his age and an impressive visual memory, which is what help him to visually scan and process the information around his environment, so this make him a quick learner. She even mentioned the possibility of Francis to be in the advanced class. She has been following his development since he was a baby and she mentioned that the gap between Francis and kids around of his age is very noticeable for her.

Francis's development has been consistently advanced since he was a newborn. The first time I noticed something different, it was when he was a few weeks old and I saw him trying to leave his upper body while supporting by the booppy pillow, and then he actually sat.  I got nervous rather than amazed!  I knew in that moment something was different with him. Even when he is still little to ensure he will always be advanced for his age,  my husband and I have a strong feeling that things will be different with him somehow.  
Based on my observation, I see Francis's advanced development in the following areas:
  • Language skills: Francis has a highly developed expressive and receptive communication skills.  Francis has an extensive vocabulary and the ability to learn new words easily. He began to understand and carry out multi-step directions between 14 and 18 month.  He started to use more complex language at his 20 months because he had adjectives, verbs, nouns and prepositions and began to use 3-4 word sentences. At his 23 month, he began to use 5 word sentece. Example: Daddy sits next to me. For us is not hearing new words, it is hearing new sentences and phrases everyday, it is like a little conversation between us. He ppropetly uses the word help, please, sorry, excuse me or por favor without prompting and Thanks, Thank your or gracias properly all the time. This skills began to emerge when he was 15 month without our intervention, which it cut my attention because these social-communciation skills emerge when a child is 3 year old.
  • Learning Abilities: I don't see he is in advanced toddler because he can recognized color, shapes, numbers, all the letters if the alphabet upper and lowercase, route count, sightread, do more complex puzzles for 3 year old kid, understand the concept of sorting in one explanation and currently he is trying to count with his fingers. Many toddlers can learn many of these concepts at the same age than Francis, even kids with different abilities, but it requires time and effort. Francis can effortlessly absorb and incorporate all this new information and ideas and generalize them to real objects and everyday life situations. I do believe environment influence in his learning because we have  varied selection of toys, educational videos and books, but I don't sit to teach him anything as I do with Tommy. I even avoid to work on structured activities with Francis around because he creates too much distraction, so I cannot focus on Tommy. The only structured activity we do together once in a while is the iPad.
  • Emotional and Behavioral Traits: One thing I have noticed quite different since Francis was a 8 month old is that he was not easily distracted as it is usual for a baby, and it is getting worse because he can cry non-stop for about 30 if he doesn't get what he wants, so I have started disciplining him. Even when an hour has passed, he recalls what he was requesting an hour before. I also notice that he is overprotective with Tommy. I began to noticed this since Francis was 16 month old during my struggle to make Tommy to pick up his toys. Francis run and picked the toys for Tommy and he still does it, so I tell him that Tommy can pick his toys. He gets very overprotective if a doctor or a nurse takes Tommy. Francis gets very anxious, calls me "mama" and begin to point where Tommy is. So I calm him down saying something like: The doctor is my friend, she is helping Tommy. It is like seeing a little guardian dog!  Francis always make sure that during snack Time, Tommy gets the same treats than him. Example: One day, I gave him a can juice and didn't give juice to Tommy because Tommy was eating ice cream. Francis started to get mad at me and jelling "mama. mama." So stop what i was doing and I got closer to him and them he said: "mama, Tommy juice." So I brought a can of juice for Tommy, but Tommy didn't want it, so I told Francis that Tommy was ok, he didn't want juice. On June 26, TOmmy for some reason was upset and didn't want to wash his hands, so I had to keep a firm position about washing hands before eating because Tommy was very revelious and he can wash his hands. He fianlly gave up after 10 minutes or so. After Tommy sat to eat, I was in the kitchen serving my dinner and Francis came to me pushed me to the table close to Tommy and asked me to sit. When I was sat Francis climeb on my lap, hugged me and said: Mama, Paz (piece), Paz (piece) Mama. He wanted me to be in piece with his brother, and not mad. This shows to me he is more emotional aware and he has the language to express it than most kids of his age. He is too polite for just being a 2 year old.  
Because of our last Parents as Teacher visit, I am starting to learn more about kids with advanced development and how to support them, because they also face challenges, they also struggle to be understood and their feelings can easily be hurt, which is something I see on Francis. It may be too early, but as a mom I can see what other people cannot about my kids and I do care about my kids feelings. It seems the early kids with advanced development are identified, the better they overcome any challenge will come as they grow up. 

I contacted a psychologist in our area, who specialized in kids with advanced development and their families. She thinks that Francis has a lot of characteristics of a high-potential child, but little kids are like sponges, so we should wait until he goes to school. 
She also recommended to keep tract of his milestones, which it is what I am doing by blogging about him, so we can have proof of his development and present them to the school when time comes. Then, we should make sure he gets a screening to determinate what class will be appropriate for him; because of he is being raised bilingual he can easily be overlooked. 

If Francis's path is going to be also different, I am ready for it. God has giving us a precious boy who is pure joy! We all enjoy Francis, he is a funny little guy. When he comes to the room where Tommy and I are, he greats us: "Hi Guys, How are you doing there? He lights my days.


Happy Birthday, Francis!

Tuesday, June 11, 2013

Prayers for Gage!

Along my journey with Tommy, I have the opportunity to meet other families who also face a different and unique journeys with their kids. One day while taking Tommy to his private paid OT services, I met Gage and his family. Since I saw him, he stole my heart. He is a very sweet little boy who deserve to enjoy life as any kid of his age. Gage is a couple of months younger than Francis. Gage was born with Mastocytosis which is a rare skin disease that bring a lot of health complications. When Kellie, Gage's mom,  explained to me about Mastocytosis she mentioned Gage's case may be unique in the world.  Here are some lines how Kellie discribes Mastocytosis:
"Mastocytosis is a rare skin disease for which there is currently no known cause or cure. All people are born with cells called mast cells within every tissue of their bodies.  Mast cells contain chemicals (histamine and heparin) that are released into our systems to perform various duties, playing major roles allergy reactions and anaphylaxtic reactions, but also play a protective role as well in immune responses and wound healing." http://kellie-ewell.blogspot.com/
Gage will have a bone marrow biopsy in July. This is a procedure that is too much for a little one, but it needs to be done. I am a mom, I truly understand Kellie's worries and broken heart. Click here to read more details about Gage coming biopsy in July.

Please keep Gage and his family in your prayers. 

Wednesday, June 5, 2013

Miracles happen in very simple ways

I do believe that miracles happen in very simple ways. God has chosen me to weakness them along my journey with Tommy. Many people may think we are in an unfortunate sitiation because of having a child with Trisomy 21 or some people may look at us with sympathy. But we all are in this world with a propose and if we truly believe in God we will be in his grace to be part of his Kingdom; but for this, we have to become like little children, which I think for many "normal" people this may not be possible, but those who are not considered "normal" are ahead of us to become part of God's Kingdom because of the purity of their hearts. I understood this one day when I went to mass; that day, I understood I am rising a child that is closer to God's grace than the rest of us. So I have accepted God's mission to rise my son and help him to reach his full potential.
"2 He called a little child and had him stand among them. 3 And he said: "I tell you the truth, unless you change and become like little children, you will never enter the kingdom of heaven. 4Therefore, whoever humbles himself like this child is the greatest in the kingdom of heaven. 5"And whoever welcomes a little child like this in my name welcomes me. 6 But if anyone causes one of these little ones who believe in me to sin, it would be better for him to have a large millstone hung around his neck and to be drowned in the depths of the sea." Matthew 18:2-6
I do believe Tommy is a miracle and I am here to weakness that!  

January 14, 2013 is marked in my calendar as a special day, because Tommy suddenly began to do things at school he was not doing before and the teacher email me to tell me about it.  Since January, we have been seeing just positive and progressive changes on him.  

"Whoop whoop moment:  Tommy in the motor room at 9:20 a.m. independently jumping on the tramp for over 5 minutes then 5 plus independent climbs up to the top of the bolster to grab on to the trapeze swing.  The rest of the day we saw increased affect, social awareness, a completely independent transition and the word applesauce to request in combo with a picture card over 3 times.  I also saw cause/effect toy exploration with no stimming.  Big Day!!" Teacher's email
 June 3rd, 2013, Tommy suddenly began to follow instruction like never before that my husand and I noticed the difference right away since the day started.  The whole day was full of surprises. Francis and Tommy were spontaneously pretending play (Tommy completely lost his pretend play skills after January 20, 2013). They were running around and then Francis began to push Tommy and I said: Francis, no pushing. Then, they began to run again. Francis pretended to push Tommy and Tommy pretended to fall down, both of them were laughing (Of course, They were laughing at me). So I laughed. This was a real interaction with not intervention, just them being kids and Tommy being part of it.  Later, They were playing independently in the climber, and then, I just had to step back and watch them to play very properly, except for Francis puching Tommy. Tommy is more careful with Francis. Then, Tommy began to explorer and think what if... "I slide down from a standing position". (It is great activity for balance, but it is not a saved idea) and then he did it. He was successful and then, he jumped to the ground when he got to the edge of the slide. I thought that it would be hard to correct him. So he tried it again, but this time he wasn't successful and felt hard, but didn't cry. So I told him: Tommy, it is not safe, you have to sit if you are going to play on the slide; and then, he listened and sat every time he went down the slide. On Monday, I suddenly noticed an emotional growth on him, too. Really, he was acting more mature.  By bath time, he suddenly began to color. Tommy has struggled for 2 years with attention span deficit and having a hard time to even look at the paper to color. Coloring it was something he used to enjoy! He was even tracing vertical and horizontal lines. He was starting to work on circles, but these skills were gone. Then on Monday, he took the star crayon we have in the bathtub and began to color under the influence of his own desire. Then, he drew a perfect circle on the bathtub. I was surprised, so I didn't say anything to him I just observed what he was doing, took pictures and began to sign the song "Colors all around" and he joined me to sing.


I couldn't believe he was enjoying 
just coloring and keeping his attention
on the wall rather than getting isolated.


Tommy has struggled so much after the hospitalization and then yesterday, like magic, things began to change for good again. Tommy has AUTISM, which is the first time I am going to post about it and this is what it's truly affecting him. But I has my faith in God that Autism will go away. On Monday, I weakness God's presence through Tommy's interaction and being aware of his surroundings. God let me know that he has marcy!

My dear Aunt has done something special for us. She is not a wealthy person and they work hard to make money with a small business she and her husband have. But she feels she can not support us because being so far away, so she decided she will do something special for Tommy. She offered to the church from the small town where my mom's family is a donation, a Divine Child Statute and pray for Tommy's health. She donated the Divine Child Statute to the church on May 25th, 2013  and it  was a big celebration, the whole community got together to welcome the Divine Child at the church and prayed. Remember Jesus's words:

"For where two or three are gathered together in my name, there am I in the midst of them". Matthew 18-20
God is listening and seeing the faith my aunt has, as well as, her kindness of offering prayers for Tommy's healing. One day, we will travel there to visit the Divine Child. Sunday, June 10th there will be a mass offered for Tommy's health.

Many of you may not know who the divine child is. The Divine Child has a special place in the hearts of Latin American people because it represents Jesus from his nativity to the age of 12. According to catholictradictions.org:

"The devotion to the Divino Niño in Bogota Colombia began with Fr. John Rizzo, a Salesian priest from the region near Arenzano, Italy, who already had a great devotion to the Infant Jesus.
In 1914, the Salesians were building a grand church in Barranquilla, Colombia, in an extremely poor locale. The Superior asked Father Rizzo to ask for donations from the people for the construction of the new church, something he was reluctant to undertake because of the immense poverty of these people, so much so that when he returned to the rectory he had not collected a cent! The next day, the Superior asked him to go out again and gather the necessary donations. This time, Father knelt in front of the Blessed Mother to ask her help in this difficult assignment. In seeing the Child Jesus in the arms of His Mother, Father John thought to himself that up to now, he had asked for favors through Mary’s intercessions, but he had not brought his prayer requests directly to the Child Jesus. Father John decided that he would entrust all his efforts to the Child Jesus. The following day, full of anguish he went to pray before the statue of Mary, Help of Christians. Then with all his soul, he pleaded that the Holy Child give him the courage to beg for the works of God. His prayers were answered.Raising his eyes, he saw the little Child Jesus, smiling with His arms outstretched as if to say "Take me with you. I want to accompany you."  From that time, he became a great apostle of the Holy Child. He spoke of Him, he worked for Him, and he dedicated his life and all his energy to promote devotion to the Infancy of Our Lord... " Click here to read the full story. 
Baby Jesus or the Divine Child Jesus has a special place in Latin America. The strong influence of the global advertising of Santa Claus (St. Nicholas) has not totally vanish the reason of Christmas, the Nativity of the Divine Child. One thing I remembered from my Christmas in Panama when I was a child is my neighbors and relatives asking me, What did the Baby Jesus bring you for Christmas? That simple question kept me in perspective about the real reason we celebrate the Nativity on December 25. 
Tommy has broken so many stereotypes about his diagnosis because God is there acting in a mysterious way. Please keep praying for my son.


Friday, May 17, 2013

Building his own path

For the first time after 2 years, I feel things are truly working for Tommy again. I have been able to put in place everything Tommy needs for a true recovery. I have carefully planned and requested support from the School District to the Department of Mental heath, from my family to my husband's family to stablished an action plan. Even the place where I work has a part in my action plan because they allowed me to change my schedule, so I can have time to work on Tommy's neuropdevelopmental program. We will start the neuodevelopemental program that it is intense, requires consistency and time every single day of the week, but I am so ready for it. We will be working with a well known neuro-developmentalist. The Neuro-developmental Approach is individualized to address Tommy's unique needs and challenges to help him to get the next level.  I am also waiting for the opportunity to start two new treatments/programs, one is a program based on neuroscience and the other program is focused on emotional growth (Yes, I am non-stop like Francis). 


Unfortunately, the state where we live is behind in the latest private paid treatments and programs for kids with special needs, but thanks to technology we can have accesses to them. As far as education, our state is also behind nationwide. Its overall grade in education was a C this year, up slightly from last year's grade of C-. But I have found a balance in this matter, so as a parent I am deeply involved in Tommy's education and his personal growth as an individual. I support his IEP team in every possible way, regardless I work full time and I have kept going with personal goals I have set for Tommy. His team has even commented to me that they are not used to have parents so involved in their kids education as we are.


Regardless what I have planned for helping Tommy, he is the one who is building his own path. It makes me feel so good to know that Tommy has found a friend. It is amazing how they complement each other. It reminds me when I was a child because my first friend was actually my cousin who is  about a year younger than me and it is a boy. Tommy is one year older than his friend and his friend is a girl.  It is the first time both of them are interested in other kids rather than their siblings. When he hears her name, his face lights up and the same happens with her. Regardless the challenges they both face, they are finding themselves as individuals capable to build strong relationships.


I couldn't pronounce his friend's name at first, 
but I got it after asking him: What is your friend's name?

Watching them together is amazing!
The date we took this picture, we went over to celebrate Ezmae's birthday.
Tommy didn't show sensitivity to the sound of the happy birthday song. 
Her birthday marked the beginning of Tommy starting
to overcome his auditory processing issues. 

At school, Tommy has done an enormous progress in a short period of time. Yahoo! This doesn't surprise me, because it is how it was before all this craziness. His teacher is very impressed how he is communicating wants and needs, being part of the group, enjoying to practice writing his name and participating in the class. His vocabulary keeps increasing!  Currently, he keeps an IEP goal to maintain his speech skills because he still shows oral muscle weakness; but, Tommy will lose* his services for speech at some point because he can articulate words very clear with beginning and ending sounds, as well as articulate phrases with continue sounds, which means he has good speech fluency; howsoever, he will keep the services for language development. His gross motor have speedily improved recovering and surpassing all gross motor skills he lost in period of 4 months and he is now working on catching up. This kid is amazing!



We have a lot of work on Fine Motor /Self-care skills because most of the skills he lost haven't came back. But I found the cause, the reaction he had to the antibiotic that caused a massive muscle weakness it also cause ocular muscles weakenss —Vision and fine motor work together. Tommy began to turn his eyes in, one eye more than the other after the hospitalization. So we took him for a check up last years, and his former optometrist said it would go away. If Tommy won't have hypotonia, I would agree with this optometrist.  But after a year, I didn't see improvement rather than getting worse, so I decided to take action. So we are working now with a developmental optometrist who was recommended for the Sensory Therapy Center where Tommy receives private paid services.  Tommy was seeing for the Developmental optometrist on April 27, who determinate that Tommy's vision issues is because he has ocular muscle weakness that it is causing farsightedness. Before the hospitalization, his former optometrist told us his farsightedness had despaired –this another proof that the medication cause an overall muscle weakness. His new optometrist prescribed glasses for Tommy to avoid that his eyes keep turning, so his focus system doesn't get affected. We also are doing vision therapy exercises. His vision issues were affecting his performance at school, but his teacher agrees that Tommy knows more than what he shows, but his focus issues it is interfering with it. She is aware that Tommy can count  in English and Spanish, saying his colors, but when it is time to test him, he chooses not to say a word. The glasses has been like a magic wand, his focused during structure activities improves while he is wearing the glasses resulting in better fine motor skills during structure tasks. When Tommy was a toddler, he had a period where he had an amazing attention span, even his former therapist were amazed of it. I have a good feeling seeing him going back as he used to be with fine motor activities.

Tommy wears Miraflex glasses.
They are safe for kids to wear because
they are made by a flexible material that doesn't break.

We took a break from the swimming lessons for about 5 weeks, so we thought he could regress; howsoever,  his best performance on the swimming pool was the day he came back. Tommy's love for swimming is amazing. He is now practicing free-diving, which is something he discovered on his own. He does use the breath-holding technique really good and practices in the bathtub every time he has an opportunity.

 I am putting all these things together for him, but he is the one finding his way.
This is just the beginning of a true and full recovery!



THE SKY IS THE LIMIT!
_______________________
*Even when Tommy loses his services for Speech because he won't need it from the educational stand point,  I have in my action plan an innovative oral motor treatment to treat tongue trusting because medical procedures are necessary to treat tongue trusting. A computerized test determinate how the oral structure (muscles and bones) is functioning; therefore, the specialist can find specific areas in the mouth that need treatment that are not usually spot with observation. This is an advanced treatment, which means is expensive; howsoever, this won't be until Tommy is  about 7 or 8 years old so we have time to save money.




Thursday, May 9, 2013

WARNING! The antibiotic Azithromycin can be life threatening


It  is not the first time I am going to post about Azithromycin, the antibiotic it was giving to Tommy to treat him from the pneumonia. The doctors were never sure he actually got pneumonia while he was hospitalized two years ago, but they gave it to him. One of this medication sever side effect is muscle weakness, but it goes beyond that, this drug has a WARNING from the FDA because can be life threatening. If you have heart issues, know someone with heart issue or muscle issues (the heart is a muscle) please pay attention to the following warning:


WARNING TO EVERYONE WHO HAS HEART ISSUES AND MUSCLE ISSUES!



Safety Announcement[3-12-2013]   The U.S. Food and Drug Administration (FDA) is warning the public that azithromycin (Zithromax or Zmax) can cause abnormal changes in the electrical activity of the heart that may lead to a potentially fatal irregular heart rhythm. Patients at particular risk for developing this condition include those with known risk factors such as existing QT interval prolongation, low blood levels of potassium or magnesium, a slower than normal heart rate, or use of certain drugs used to treat abnormal heart rhythms, or arrhythmias.  This communication is a result of our review of a study by medical researchers as well as another study by a manufacturer of the drug that assessed the potential for azithromycin to cause abnormal changes in the electrical activity of the heart. Click here to read the complete safety announcement from the FDA official website.

Thank God that Tommy doesn't have heart issues, so I don't want to even think what it would have happened when this drug was given to him. More than ever before, I feel strong in not allowing doctors giving any type antibiotics to Tommy until we get the DNA test done. I will request to our local Down syndrome for Checking Tommy's heart because the antibiotic went all over his body, so I want to make sure his heart muscle is working properly. 



Tuesday, April 30, 2013

Sensitivity to medications, a silent killer

After two years, Tommy is just starting to recover from the catastrophic effect that the hospitalization had over him. Since Tommy came back to the hospital until today, I keep telling that the medications  had a dramatic side effect on Tommy because he has "sensitivity to medications." I feel the responsibility of  spreading the word because this is real and it is killing people. I believe people should be aware of this, but doctors don't talk about this issue quite often with their patients. 

Here is an article from The New York Times, that explains that the use of antibiotics is causing serious muscle weakness and vision problems, exactly of what we have observed on Tommy since the hospitalization two years ago, even when the antibiotics given to him are not mentioned in the article, the side effects are listed in info that was given to us with the medications. Here is a fragment of the article of the experience of Mr. Balch, a patient who lost gross motor skills and had vision problems due to the side effects to an antibiotic:

"...In an interview, Mr. Balch said he was healthy until April 20, when a fever and cough prompted him to see a doctor. Nothing was heard through a stethoscope, but a chest X-ray indicated a mild case of pneumonia, and he was given Levaquin. Although he had heard of problems with Levaquin and asked the doctor if he might take a different antibiotic, he was told Levaquin was the drug he needed.After just one dose, he developed widespread pain and weakness. He called to report this reaction, but was told to take the next dose. But the next pill, he said, “eviscerated” him, causing pain in all his joints and vision problems.
Debilitating Side EffectsIn addition to being unable to walk uphill, climb stairs or see clearly, his symptoms included dry eyes, mouth and skin; ringing in his ears; delayed urination; uncontrollable shaking; burning pain in his eyes and feet; occasional tingling in his hands and feet; heart palpitations; and muscle spasms in his back and around his eyes. Though Mr. Balch’s reaction is unusual, doctors who have studied the side effects of fluoroquinolones say others have suffered similar symptoms.Three and a half months after he took that second pill, these symptoms persist, and none of the many doctors of different specialties he has consulted has been able to help. Mr. Balch is now working with a physical therapist, but in a phone consultation with Dr. David Flockhart, an expert in fluoroquinolone side effects at the Indiana University School of Medicine, he was told it could take a year for his symptoms to resolve, if they ever do disappear completely..."

You can read the full article on The New York Times website. Click here! 

I need science on my side to fight back for my son, so Tommy will be seen for a new Doctor in July and I hope this doctor will listen and agree to do a DNA test to find the medications are harmful to Tommy. I will give more details of this test, if I finally can get it done this year.

THE SKY IS THE LIMIT!

Monday, April 29, 2013

Things are looking better!


When one is expecting a child, one can never know how things will be. As they grow-up, it is like unwrapping a present with all kind of surprises. Kids are gifts from above! Things are looking good for both of my kids. I have a lot to update about them, but mean while I just want to enjoy them. Looking at this picture it makes me realize they are growing-up. They physically are not babies anymore, but in my heart, they'll always be my baby boys.  

Tuesday, April 23, 2013

Yogakidz

"Tommy doing the Frog Pose and paying close attention
 to what Susan will demonstrate next..."
Teacher's Email


I am so TRILLED knowing that Tommy likes Yoga.
Yoga is in my master plan to help Tommy overcome his challenges.
But I wasn't sure when to start it! I guess I know now.

I have a lot to update about my boy. But I will do it when I get a chance.
My action plan to help him is up and running!