Thursday, December 15, 2011

Thank you from the battom of my heart

"I promise I will never let you down. I won't rest until you reach your full potential. I promise I will do everything to change the world for you. If I can change one person's mind about Trisomy 21, I will change the world for you."  October 31st, 2007 around 11:00 am. My promise to my son Thomas Aidan Lane

Until today, I haven't rested in finding ways that can help Tommy to reach his full potential. I don't put him in the box of stereotypes. I don't expect less from him because he has a genetic disorder that slows his abilities. He always shows me that inside him there is more potential that what we can imagine. When I was so emotional because I couldn’t understand why all his regressions, he began to ride his bike (trike) effortless. Completely, the opposite of what I was told. Tommy with this action, one more time, showed me the sky is the limit. So I stepped up for him and I have left behind my emotions. I am armed with a team of professionals, new toys for his therapy play, new ideas to make learning fun, an unconditional playmate (his little brother) and a wonderful family who will be beside us not matter what. This is the beginning of the Chromosomal War II. If you missed Chromosomal War I, here are the links:


Raising a child with a genetic disorder has more challenges than raising a child with a typical development. But unconditional love is all about; if you truly feel LOVE the rest comes easier: 

1 Corinthians 13
The Way of Love
1If I speak in the tongues of men and of angels, but have not love, I am a noisy gong or a clanging cymbal.2And if I have prophetic powers, and understand all mysteries and all knowledge, and if I have all faith, so as to remove mountains, but have not love, I am nothing. 3If I give away all I have, and if I deliver up my body to be burned,a but have not love, I gain nothing.
4Love is patient and kind; love does not envy or boast; it is not arrogant 5or rude. It does not insist on its own way; it is not irritable or resentful;b 6it does not rejoice at wrongdoing, but rejoices with the truth. 7Love bears all things, believes all things, hopes all things, endures all things.
8Love never ends. As for prophecies, they will pass away; as for tongues, they will cease; as for knowledge, it will pass away. 9For we know in part and we prophesy in part, 10but when the perfect comes, the partial will pass away. 11When I was a child, I spoke like a child, I thought like a child, I reasoned like a child. When I became a man, I gave up childish ways. 12For now we see in a mirror dimly, but then face to face. Now I know in part; then I shall know fully, even as I have been fully known.
13So now faith, hope, and love abide, these three; but the greatest of these is love.


I admire my son instead feeling sorry for him. People may think he is in at disadvantage situation in this world, but the trust is he is up high and away from us, so we have to wait and see:


Matthew 19:23-26



23And Jesus said to his disciples, “Truly, I say to you, only with difficulty will a rich person enter the kingdom of heaven. 24Again I tell you, it is easier for a camel to go through the eye of a needle than for a rich person to enter the kingdom of God.” 25When the disciples heard this, they were greatly astonished, saying, “Who then can be saved?” 26But Jesus looked at them and said, “With man this is impossible, but with God all things are possible.” 27Then Peter said in reply, “See, we have left everything and followed you. What then will we have?” 28Jesus said to them, “Truly, I say to you, in the new world,b when the Son of Man will sit on his glorious throne, you who have followed me will also sit on twelve thrones, judging the twelve tribes of Israel.29And everyone who has left houses or brothers or sisters or father or mother or children or lands, for my name’s sake, will receive a hundredfoldc and will inherit eternal life. 30But many who are first will be last, and the last first.


I have been busy trying to understand what was happening to Tommy; why he was regressing in his development; how I could help him by stopping all these regressions; Calling to the medical community to find answer to my questions. While all this chaos was happening, my mother-in-law and my father-in-law were organizing a Trivia Night to raise money to pay the medical bills we got due to the hospitalization and the private paid services Tommy is getting. The Trivia Night was on November 18, 2011 at 7:00 pm and it was a successful event. My mother-in-law did a wonderful job organizing this event. Her friends and family members help her to put everything together. That night, we were very impressed about how well organized the event was. The people’s respond was amazing, that warms my heart just to remember. Thanks to them we have a relief in our shoulders, the best of all, the treatment to help Tommy with his regressions and sensory issues will be able for him without worries about not being able to afford them. Since I received the positive results that my first son had Trisomy 21, I have been praying for strength and wisdom. I have also been praying that God put the right people in our path who believe in our son's potential. God listened to my prayers and I was able to experience it in the Trivia Night!

Since the middle of September until today, we have been working hard to help Tommy be the child he was before. It is beginning to show good results. I am hearing from people at school and extended care telling: he is getting engaged, he is socializing, we are seeing progress. So I can just say from the bottom of my heat:

THANK YOU to all of you who support my son in the trivia night. THANK YOU to the estrangers who donate money for the trivia night without knowing Tommy. THANK YOU to the School District, Tommy’s teacher, Therapists, Extended care staff for your dedication in helping Tommy.
THANK YOU to our families, friends and coworkers who support us in our journey of raising Tommy.
THANK YOU to your support, I will be able to continue my plan of action for Tommy to reach his full potential. He is an amazing kid that has the natural ability of unifying people.
THANK YOU FROM THE BOTTOM OF MY HEART! 



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