Over the past 5 years, I have experienced many changes and emotions in my life due to Tommy's diagnosis. In the last past 5 years, I have been working with him in every way possible, but specially in the last past 2 years. I am exhausted! Howsoever, I am happy that all my investigative and therapeutic work at home is starting to work. I am not expert in child development, but as a mom, I am trying to do the best and beyond for my son.
I began this year with one resolution in mind. Dedicate time to myself. This doesn't mean I don't want to be around my kids. I love to be around them. But it means, spending less time in my investigative work, watching more TV, going out more with my husband, friends and other moms with kids with T21. To be myself again! I got lost among therapies, doctors appointments, working full time, being an advocate and trying to be a sister, a daughter, a wife and a mom. So I forget about myself to get the time is needed to do everything that it is in my action plan for helping Tommy. But so far, I am sticking to my resolution.
Since the beginning of this year, my husband and I plan a date every month. I had taken us 5 years to get to this point, but we love each other and we are committed to each other, regardless everything we have over our shoulders. I feel more relaxed every time we spend time together.
Tonight, I went to a moms night out from moms with kids with T21, sponsored by Albert Pujuls Family Foundation. We all had fun! And of course we talked about our kids and their challenges, somehow we all were connected. It just feels good to be able to talk openly about our fears, anxiety and worries even when we just met for the first time. I deeply grateful with the Albert Pujols Family Foundation for organizing this event because I felt myself back tonight.
1 comment:
I'm very excited too, as I'm a catholic as well and from LatinAmerica culture. Thanks to the blogs out there, I learnt that there is a petition to have a saint for Trisomy 21. That would be awesome!
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