My promise to my son

The day that I got the test results of expecting a child with Trisomy 21, I promised to my son I will never let him down. I worked hard with him during the early intervention program and he was doing many things age appropriate.  But something changes after he got hospitalized almost three years ago. When I called to the hospital saying that my son regressed after the hospitalization, they told me they see it quite often and they did not suggest any help, just to wait if it would improve. Basically, it is what is expected because he has  Down syndrome. As I promise to my son that I will never let him down, I made a decision that I will find the answers and if possible the cure.

Until today, I haven't stopped looking for those answers to my questions. Last weekend, I was watching a medicine documentary, they showed a typical teenage girl who began to lost her balance, then her motor skills; after this, language skills, vision and goes on. Pretty much what I observed in Tommy. Like a lightning, my brain made the connection.  I found the last piece of the puzzle. So I went online and I found the relation between Autism with my son, which it could be minimized if doctors paid more attention about cellular dysfunction in kids with Down Syndrome. I contacted one of my blogger friends who knows a lot of about this topic and she gave me a starting point. It is frustrating that I have had to spend 3 years of exhausting study, to the point of obsession, because doctors didn't have an answer to my questions. 

Now, I feel more empowered than ever before. I know I am going in the right direction. I have also found a pediatric neurologist and a scientist researcher that will contact to guide me. When Tommy began to regress, I promised that I will find the way to get him out of there. I won't stop until I can complete my action plan. And then, I promise to you (kids with Down syndrome and Autism) that I will find a way to share what I have found with many families as possible. 

THE SKY IS THE LIMIT!