Saturday, October 25, 2014

Update about Tommy

Today, We meet Mrs. F. She will be Tommy's private paid Speech therapy. She has experience working with kids with a single diagnosis for Autism as well as a single diagnosis for Down syndrome. So it was easier for her to spot  that Tommy's Down syndrome diagnosis is not the challenge. All the challenges that she observed are due to his Autism diagnosis. Finally, I found a Speech therapy that truly understand Tommy's challenges. She could observed that definitely doesn't have struggles with articulation. She also was lucky because Tommy showed to her he can say many, but many words. So she agrees with me that we have to work on what it is developmentally appropriate for him; therefore, playing skills are huge factor for Tommy able to communicate.

Mrs. F.'s intervention will incorporate Tommy's routine with visual support. Which it is something I like because I can make flashcards base on Tommy's environment and I will be also available to use them as part of Tommy's neuro-developmental program. I was able to get Tommy engaged in 'people play' with the neuro-developmental program. Now, he is allowing his brother to have 'people play' with him. This is the first stage of the developmental ladder for communication skills. I have tried to get him engage to play with toy and I have a slow progress on this stage, so I realized that I was needing a professional to train me on the second stage of the communication ladder because engaging a child with Autism is harder than engaging a child with Down syndrome. So I am applying the principals of the neuro-developmental program with the guidance of a Speech therapy. Mrs. F. has experience on playing skills as the first stage of communication skills.



We will also incorporate more neuroscience in our intervention, this time with a Neuromuscular specialist so we can finally get the root of the problem. I have realized that there is a lot it can be done with ADVANCED MEDICINE if Tommy gets the diagnosis for Mitochondrial dysfunction that will definitely benefit his outcomes for Autism as well as Trisomy 21.

There are also two international specialist who are successfully working together in helping kids to recover form Autism. They do not live in the USA. One live in Europe and the other one in South America. Most of their work is not translated into English. Howsoever, they have information in Spanish for my benefit. All the kids treated under their protocol have fully recovered from Autism. So now I am in the quest on how to work with their protocol from the US.

I have put the puzzle together for my son to overcome Autism, the challenge sometimes is MONEY and TIME. But I am making it work!

The sky is the limited!

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