Tommy was prenatally diagnosed with Trisomy 21 when I was 3 month pregnant. My pregnancy was considered HIGH RISK as soon as he was diagnosed. It was considered high risk because most natural miscarriages happen because the human fetus has a genetic disorder. So the possibilities he could die in my womb were high. But while monitoring his development in the womb he was exceeding all the doctors' expectations. Once, he was born he confirmed to all of us how strong he is. He was a good size baby because his weight was 8lb 4oz and his hight 20.5.' He didn't any major complication of syndrome –no heart defects. According to several studies done by the doctors, Tommy's internal organs were typical developed. He rolled over in his first months, while he was an infant he accomplished many milestones righ on track and some ahead. He didn't has delays until he was about 7 or 8 months. During his first 3 years, he wasn't sick very often —not common colds. But the beginning of this year, things changed for him. He got very ill due to the Respiratory Syncytial Virus (RSV). My boy spent 13 days in the hospital. After the hospitalization, his sensory issues got worse and it also affected his development. We were so happy having him at home after he was realized from the hospital, but it was hard to realized he lost many skills – he had a huge regression in his development. But not matter what, my boy is strong, and day by day, we are working together to get those skills back. I have seen improvement in the last weeks.
Not matter what the prognostics were for them before they were born, they both exceeded all the expectations. They are here today building their story, so I can tell their story. Many unborn babies may not have the change to build their stories because they were prenatally diagnosed with a genetic disorder. Any baby that is born with or without a genetic disorder deserve to be loved and protected regardless the circumstance they are coming to this world. Not matter the circumstances, we chose our babies first!
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